Something a little different, today. I wondered for about thirty seconds whether this was “too much information” for my blog but well, it’s relevant, (everything is relevant?), so here’s your warning.

Today, I finally (actually) realized I have to remove my hormonal IUD. I knew I was developing worse mental side effects soon after a new one was placed, in August. (I got a Kyleena in fall 2019, and then with the Mirena hormonal IUD, in fall 2024. The Mirena brought intensification of everything, which helped me identify the previous effects of the Kyleena.) Influenced by my doctor, I hoped things would “even out” after a few months, and I was desperate to maintain protection from pregnancy. My hope was delusional and self-destructive. Today I searched youtube and then reddit for other women’s experiences and learned I’m not alone. (Cue crying.) It was the catalyst for my realization.

Mood has been by far the worst cluster of side-effects. I feel like I’ve had no ability to deal with stress/stressors and like I’ve been going periodically crazy. Being stuck in bed sobbing for days with no idea why or how to get out of what feels like a deep hole. Followed by days of feeling empty, anhedonia, fatigue. This has accompanied actual stressful events (in personal life and in the world) since I was first fitted with the Kyleena. Soon after that I moved to Indonesia, which began a period of instability and uncertainty in living sitations (housing, immigration status, a new relationship and then marriage in a foreign country), as well as the pandemic and acceleration of apparent civilization collapse. It’s difficult to distinguish between normal stress and side effects, but I assume now that my responses to these things were impacted negatively by the Kyleena IUD. I don’t know how much the IUD is related to the asymmetrical psoas syndrome that rapidly intensified and has physically disabled me during that same time period. But I believe that the stress of those months, from October 2019 through the summer of 2020, was a significant contributing factor. So if the hormonal IUD reduced my ability to deal with stress (and there are peer-reviewed studies showing that hormonal birth control raises cortisol and lowers GABA levels), it likely played a significant role in my physical impairment over the last 5 years.

Here are all the side-effects I experienced.

mood effects included anxiety, depression, panic, feelings of dread, intrusive thoughts, paranoia, irritability (meanness, rudeness, lashing out, way more than usual), feeling out of control, crying fits, despair and hopelessness, frequent overwhelm, including from small things, episodes that felt like depressive paralysis or catatonia, inability to focus, fatigue, suicidal thoughts, depersonalization.

nausea, shakyness, dizziness/vertigo, especially in the morning (like “morning sickness”)

excessive sweating, night sweats, excessive and strange body odor, “feeling gross” even right after bathing

insomnia

migraine/tension headaches

increased body hair (minor but noticed)

melasma on my face (minor but annoying, impactful)

feeling of puffiness, bloating and cramps, breast soreness (minor, could have lived with it, except for.. all of the above)

Politics around reproductive health is already shit, and it’s only getting worse, so a lot of women are probably considering this option (hormonal IUD). For many, it works fine. But potential consumers (that’s what we are) should be aware that they can cause severe psychological side effects, including suicidal ideation. Hormone imbalance is no game. It’s typical that contemporary medicine treats (women’s) health with such disregard, that a medicine like this would be promoted by doctors (and would profit pharmaceutical corporations like Bayer, which makes these) without communication or (sufficient research? or) open acknowledgement of how severe the side-effects can be. I am not alone in feeling like it has “made me crazy”. My doctors said the IUD was low-impact and “localized”, in its effects, (all doctors seem to use this term, I assume it’s from the drug’s promotional material), but mentally it was far more intense for me than oral BC. I am the child of healthcare professionals, I generally trust modern medicine, but I believe this kind of minimization (and profit-seeking) harms women and erodes trust in the whole institution.

I’m f- -king lucky my husband is understanding, supportive, tolerant, patient, long-suffering, didn’t take anything personally, through some very tough times. Otherwise it might have been relationship-ending. Also I learned that in a situation like this, when there aren’t other options, a good partner will (despite his own fear of doctors and hospitals) insist on vasectomy.

I guess the lesson here is to feel your feelings. Listen to your body, don’t take its natural balance for granted, and try not to be gaslit by healthcare professionals. Not sure how long it will take to get back to normal, or what normal will be like. But it feels better to write all this down. Now (actually) to get the damned thing yanked out.